Positive Parenting and Latex Allergies
Excerpt : Learning to Live Positively with a Latex Allergy Your child has a latex allergy: Perhaps a mild allergy; perhaps a life-threatening one. Either way, you now have to help your child live with it.
Learning to Live Positively with a Latex Allergy
Your child has a latex allergy: Perhaps a mild allergy; perhaps
a life-threatening one. Either way, you now have to help your
child live with it. Of course, to do so, you need to be able to
live with it. You've done all the research. You know to avoid
balloons and bananas. You've latex-proofed your house. Have you
grieved?
While it might seem selfish, knowing that your child can never
go near latex, is the death of a dream for you--the dream of
your child living a safe, problem-free life. You have the right
to grieve for his or her loss. Grieve over the fact that your
child can never blithely go to a birthday party because balloons
are integral parts of that experience.
So what should you do after you finish grieving over your
child's latex allergies? That one is simple. Get mad.
"It won't do any good," you say. No, it won't change your
children's latex allergies, but you'll probably feel better
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once
you're done being angry. Just like grieving, this should only
last a few days. Go ahead and be mad that your child is
"different". Rant in private that it's not fair that your child
has to worry about things other children don't. Maybe throw a
few (soft) things because you're upset that you have to explain
over and over and OVER to people that latex allergies are real
and deadly, and because you're tired of repeating the list of
foods your child must avoid in addition to rubber bands.
When you've allowed yourself to go through the mad stage, it's
time for acceptance. It should be a bit easier now to accept
that your life will be as fully affected as your child's life.
Now you and your family can learn to help your child cope with
this life-altering allergy.
How do you deal with the fact that your child isn't invited to a
fast food restaurant for a birthday party because all the kids
will be in the ball pen--the balls are rubber, and your child
can't participate.
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Explaining to your child that he or she is
being left out for their own safety is heartbreaking for both of
you.
Children with latex allergies react to the changes and
limitations in their lives in different ways. Some just accept
it and move on. Others may accept it while they are young, then
lash out at the world when they are older and more fully
comprehend their limits. If your child struggles with the
emotional pain caused by their allergy, you may need to guide
them through the stages of grief, anger and acceptance. Children
will often stuff their frustrations deep inside because they are
trying to be "good", so you may have to talk with your child and
give him or her permission to express sadness or anger at the
difficulty this allergy brings with it.
A great way to help a child with latex allergies cope is to
involve them in protecting themselves and other children with
the same problem. You're probably becoming a bit of an activist
already, possibly fighting a
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school board to make sure that your
child's class (and preferably the entire school) is latex-free,
or asking toy shops to have lists of latex-free toys on hand.
Let your child get involved too. Bring them along when you go
before the school board and let them speak about their own need
for safety and how latex affects them. Involving your child
helps them feel like they are taking back some of the control
over their life that their allergy took away.
When your child stands up for him or herself, they are standing
up for every child suffering latex allergies, or anything else
that makes them different. Speaking out about their problem not
only helps your child cope, but makes a positive contribution to
the community. And with as fast as latex allergies are growing,
especially among adults in the healthcare field, awareness of
the problem needs to increase quickly.
It seems like an uphill battle to educate other people about the
danger of latex allergies. There will
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always be another parent
to explain things to, another toy shop to educate, another
battle to fight. But the effort is far from useless. You and
your child will connect with people. You will both make a
difference, because even tiny victories help make the world a
safer place. Most importantly, you are teaching your child to be
pro-active and not let their allergy rule their heart and soul.
Latex allergies will create daily wear and tear on you and your
loved ones. It's important to make sure you don't let yourself
get run down. Take care of yourself so you can withstand the
coming years of helping your child maneuver through the dangers
of a latex-filled world.
Reach out to others in a similar situation. Perhaps you won't
find anyone else locally who is dealing with latex allergies,
but they are on the rise, as are wheat and peanut allergies. Why
not band together and pool your energy as well as your
resources? Talking to others who have been there and done that
will
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help both you and your child. If for no other reason, when
they say that they understand they truly do.
Finally, though being pro-active in spreading the word about
latex allergies and encouraging change to a safer environment is
good, don't let your life or your child's life become consumed
by their allergy. It's very important to spend time doing things
and discussing subjects that have nothing to do with latex.
Planning activities that are safe may take a bit of advance
work, but it will be worth it when your child is able to
completely relax and just be a kid like everyone else.
About the author:
Nadine O'Reilly, M.A. is a doctoral-level school psychologist
and Coordinator of Special Services in northern New Jersey. She
creates 100's of accommodation plans for disabled children each
year. Nadine is the author of "Peter Can't Eat Peanuts" and the
Empowered Toddler series of books. Nadine's son, Brendan, has a
potentially fatal peanut allergy, and is asthmatic.
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